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2022 Rome Action Plan on Paediatric HIV & TB

GNP+

HIV MEDICINES DURING PREGNANCY AND BREASTFEEDING

GNP+[1] commits to:

73. Mobilize the PLHIV (people living with HIV) and KP networks, in particular adolescents and women living with HIV, to increase treatment literacy, demand generation, advocacy, and monitoring to increase access to services for prevention and treatment of HIV during pregnancy and breastfeeding

 

74. Raise awareness and advocacy for research and policy that support the needs of women and children during pregnancy and breastfeeding.   

 

[1] The GNP+ commitments are aligned to GNP+ new strategy 2023-2025. The commitments herein shall be reviewed from time to time as appropriate and to adapt to external environmental changes.   

Updates

  • Convened women in a consultation to identify needs for Safe pregnancies and Healthy breastfeeding practices on and offline

 

73. October 2023:

Held a physical consultations with young parents in Zimbabwe, Nigeria and Kenya,during Breastfeeding Week to raise awareness about safe pregnancy and healthy breastfeeding options for reducing vertical transmission. Discussed PrEP in pregnancy and breastfeeding, U=U in pregnant and breastfeeding parents, Treatment literacy, Access to viral load, and adherence support needs to further develop a report to be disseminated in country and at ICASA.

74. October 2023:

Facilitated Key informed interviews with health care providers in Kenya, Zimbabwe and Nigeria during breastfeeding week consultations to asses uptake and availability of adequate information on treatment adherence, preparedness, U=U, and Prep for pregnant and breast-feeding women and young parents

HIV DIAGNOSTICS

GNP+ commits to:

148. The Global Network of People living with HIV (GNP+) committed to mobilize the PLHIV and KP networks, in particular adolescents and women living with HIV, to increase diagnostic literacy, strengthen advocacy for diagnostics, address stigma, and promote demand generation and monitoring to increase access to diagnostics for children living with HIV – including Point of Care diagnostics.

 

149. Promoting peer to peer support structures to promote greater use of HIV prevention, treatment and care services among children. point of care early infant diagnosis.

All partners commit to: 

 

163. Address inequities by tackling the stigma and discrimination in communities, schools, and healthcare settings that prevent children living with HIV from accessing testing and treatment. 

164. Increase literacy about CD4 testing and viral load and promote a client-centred approach to support expansion of access to viral load for pregnant and breastfeeding women and children on treatment, including at the point-of-care. 

165. Review and assess emerging co-infections for immunocompromised infants and children, including those with advanced HIV disease, such as severe bacterial infections, fungal infections, and others for country consideration and implementation.

166. Engage affected communities for input and guidance on investment and programmatic priorities, provide support to in-country civil society organizations to engage in advocacy and demand creation for new tools, and ensure data is publicly available to support communities and civil society to monitor progress regarding uptake and implementation of essential diagnostic tools.

Updates

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HIV MEDICINES FOR CHILDREN

GNP+[1] commits to:

328. The Global Network of People living with HIV (GNP+) committed to mobilize the PLHIV and KP networks, in particular adolescents and women living with HIV, to increase treatment literacy, demand generation, advocacy, and monitoring to increase access to treatment for children living with HIV. 

 

329. Raising awareness in global fora about the structural barriers to diagnostic and treatment of children with HIV. Including Stigma, discrimination, criminalization, and violence.  

 

330. The Global Network of People living with HIV (GNP+) committed to mobilize the PLHIV and KP networks to address inequities in children by tackling stigma and discrimination in communities, schools, and healthcare settings that prevent children living with HIV from accessing testing and treatment.  

331. Raising awareness in global fora about the unmet diagnostic and treatment needs of children affected by HIV including access to Early Infant Diagnostics (EID), Post Exposure Prophylaxis during breastfeeding and access to ARV’s. 

 

332. Support treatment preparedness programs, ensure improvement of treatment awareness among caregivers of children of all ages and adolescents, and work jointly with other stakeholders on treatment literacy and demand creation for new paediatric formulations. 

 

333. Promoting peer to peer support structures for mental health support and to promote greater use of HIV prevention, treatment and care services among children. 

 

334. Increase literacy among communities about Advanced HIV Disease (AHD) among children, promote adherence and advocacy to promote a client-centred approach to support expansion of access to viral load for pregnant and breastfeeding women and children on treatment, including at the point-of-care. 

 

335. Support Community Led Monitoring to gather evidence for improved quality of services for children affected by HIV including supporting communities to rapidly communicate treatment disruptions, and shortages with key national and global health actors for rapid response actions.  

 

336. Mobilize PLHIV, KP networks and communities to help build treatment literacy, generate demand, and expand access to ARVs among children. 

 

337. GNP+ commits to convene communities and Civil Society and activists concerned about access to treatment for Children affected by HIV under the End Paediatric AIDS in Children (EPIC) initiative for collaboration and join advocacy work.  

 

338. GNP+ Commits being strategic community partner alongside ICW and Y+ Global in the Global Alliance to end AIDS in Children; being part of the steering committee, working groups and supporting country networks to engage meaningfully to meet the objectives and goal of the Global Alliance.  

 

339. Building strong community voice at global and national level particularly of young people meaningfully representing and advocating for children's access to HIV prevention and treatment.  

 

340. Through The Young Emerging Leaders program, we will recruit 5 YEL –children to support representation and advocacy at global influencing platforms. Additionally, through our EPIC program we will build the capacity of 30 community activists (mama and papa bears) who will engage in national and grassroots level advocacy for children including during national level.

 

341. Collaborate with Global and national health actors – UN agencies, researchers, funders, program implementers to inform policy, resource and program planning, implementation and monitoring that impact access to HIV diagnostics and treatment among children. – Includes being part of Coalition of Children Affected by AIDS (CCABA), Global Alliance etc 

 

[1] GNP+ commitments are anchored in our GIPA principle and will be guided broadly by the 4 key commitments.

Updates

GNP+ is building strong community voice at global and national level particularly of young people meaningfully representing and advocating for children's access to HIV prevention and treatment. 

  • GNP+ Secured a year’s grant for our EPIC work particularly to build the capacity of parent advocates in 7 countries. Through the program, the advocates - Mama Bears were supported to engage in the Country processes for the Global Fund GC7 proposal development.

  • Parent advocates participated in the GC7 process at the country level, through the support and technical assistance of the GNP+ CLAIM tools for community engagement.

  • Nominated young women to join the Global Alliance Regional Hub

 

Through The Young Emerging Leaders program, GNP+ will recruit 5 YEL –children to support representation and advocacy at global influencing platforms. Additionally, through our EPIC program, GNP+ will build the capacity of 30 community activists (mama and papa bears) who will engage in national and grassroots level advocacy for children including during national-level 

  • Establishment of the 35 EPIC champions (Mama& Papa Bears), done

  • YEL Leader and champion for children recruited – Joy Oboyi from AYPN in Nigeria

  • EPIC Champions engaging in advocacy spaces including commemorating Breastfeeding Week, the Day of the African Child, International Youth Day, and the upcoming World Contraception Day 

 

Collaborate with Global and national health actors – UN agencies, researchers, funders, and program implementers to inform policy, resource, and program planning, implementation,n and monitoring that impact access to HIV diagnostics and treatment among children. – Includes being part othe f Coalition of Children Affected by AIDS (CCABA), Global Alliance, etc

  • Participated and Represented in the CCABA thinking retreat and other strategic meetings

  • Member of the Global Alliance and actively engaging with the space 

  • GNP+ will collaborate with CCABA to organize Advocacy workshops in five countries for Adolescents and young people living with HIV effective advocacy 

  • Organizing a session at ICASA together with GA Advocacy WG

  • Continued engagement in the Global Alliance working groups

  • GNP+ shall be participating in the International Workshop on HIV and adolescence

  • GNP+ convened under their Ending Pediatric AIDS in Children work (EPIC) civil society and community organizations to identify opportunities for collaboration and advocacy messages. 

  • Shared important advocacy opportunities, materials, and information updates

  • GNP+ Commits to being a strategic community partner alongside ICW and Y+ Global in the Global Alliance to end AIDS in Children; being part of the steering committee, working groups, and supporting country networks to engage meaningfully to meet the objectives and goal of the Global Alliance. 

  • GNP+ is coordinating with ICW and Y+ on community engagement in the Global Alliance to end AIDS in Children.GNP+ is currently a member of the steering committee, the Advocacy and Communication TWG, and the Monitoring and Evaluation TWG of the Global Alliance.GNP+ also has Representation in the Alliance ESA Regional HUB from the region.

  • GNP+ supported EPIC champions “Mama Bears” along with ICW and Y+Global to engage and participate in the Global Alliance country consultations in the 12 Global Alliance countries still ongoing.

  • Together with UNICEF and Y+ Global, GNP+ has secured three-year funding from VIIV for community engagement in 3 Global Alliance countries to support 15 global alliance champions for children in community-led advocacy from country to global.  We are planning a capacity-building workshop on the sidelines of ICASA.

  • Selection of Global Alliance champions in its final stages, Champions were drawn from communities of the three sister networks ICW_Global, Y+Global and GNP+ -EPIC . The training of GA champions  has been planned immediately after ICASA

328. October 2023:

Engaged with PAC and WHO to share the WHO Brief on Viral load and the message on Risk for Pregnant and breastfeeding moms. 

329. October 2023:

GNP+ engagement at the UNGASS HLM and highlighting the focus on meeting the treatment gaps for children

GNP+ attended and participated in the Regional Consultation on Sustainable Community-led HIV response financing in Eastern and southen Africa highlighting not leaving anyone behind especially children if communities are not at the centre.

330. October 2023:

Joined the Child Survival Working Group led by Aidsfonds holding the space to advocate for the needs of children

331. October 2023:

GNP+ will participate in the UNAIDS PCB thematic segment in December - Testing and HIV

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